International Groups
Syngap Global Network
Contact: Virginie McNamar
Email:
USA
Syngap Research fund
https://syngapresearchfund.com
Facebook: https://www.facebook.com/SyngapResearchFund/
Twitter: https://twitter.com/syngaprf
Patient Engagement:
Canada
OverCome Syngap1
http://www.overcomesyngap1.org/
Email: domitille@overcomesyngap1.org or solenne@overcomesyngap1.org
Facebook: https://www.facebook.com/Overcomesyngap1/
Family forum/ Forum des familles
https://www.facebook.com/groups/1405855266176756/
Australia
Syngap Research
Facebook: https://m.facebook.com/Syngapresearch/
Contact: Danielle Williams
Email: danielle@2dconsulting.com.au
France
OverCome Syngap1
http://www.overcomesyngap1.org/
Email: domitille@overcomesyngap1.org ou solenne@overcomesyngap1.org
Facebook: https://www.facebook.com/Overcomesyngap1/
Forum des familles
https://www.facebook.com/groups/1405855266176756/
Germany
SYNGAP Elternhilfe
Contact: Verena Schmeder
Email: kontakt@syngap.de
Facebook: https://m.facebook.com/groups/605937599747915
Netherlands
Contact: Robert Punt
Email:
Facebook: https://www.facebook.com/groups/498555327018465
Republic of Ireland
Contact: Michele Giblin
Email: syngap1roi@gmail.com
Spain
Contact: Gonzalo Bermejo
Email: gonzalo_bermejo@hotmail.com
Switzerland
Contact (Francais) :
Contact (German):
UK
Facebook: https://www.facebook.com/Syngap-Global-Network-UK-794650320719562/
Contact: SYNGAP.GN.UK@gmail.com
Estonia
Maarja Krais-Leosk: maarja.kraisleosk@gmail.com
